Introduction: Hirschsprung's Disease and Anorectal Malformations are pathologies that affect the pediatric population and compromise life from birth, so diagnosis and early treatment are essential. The comorbidities that lead to long-term predispose to parents and caregivers to situations that without proper accompaniment can generate serious complications in the child. Objective: To describe the meaning of the experiences of parents of children with Hirschsprung's disease or Anorectal Malformations, who have received surgical treatment and who are in follow-up. Materials and methods: Phenomenological qualitative research, through interviews with five parents of children with Hirschsprung's disease and five parents of children with anorectal malformation. Results: Common experiences were found from which the following themes emerged: a) Difficult Diagnosis: it involves the feelings and the impact generated by receiving this news; for health personnel it is not always a situation that is identified early; b) Treatment: social isolation due to hospitalizations and the presence of an ostomy, in addition to the channeling of resources for the child to the detriment of those of the home; coping skills are required to achieve definitive surgical repair; and c) Context: health institutions can become barriers and health personnel must have more education in this regard; Social support networks are necessary. Conclusion: The experiences reflect that diagnosis, treatment and context generate great impact in the lives of parents and / or caregivers of children with these pathologies.