ImpactU Versión 3.11.2 Última actualización: Interfaz de Usuario: 16/10/2025 Base de Datos: 29/08/2025 Hecho en Colombia
Abstract TP312: Assessment of the Data Collection Strategies for Stroke Patient-centered Outcomes: Implementation of the International Consortium for Health Outcomes in Brazil
Introduction: In 2015, international experts defined a standard set of patient-centered outcome measures after stroke as part of the International Consortium for Health Outcomes (ICHOM). It aims to make outcomes comparable around the world, allowing the value-based healthcare delivery. In developing countries, it is still a challenge to implement outcome measurement for stroke patients after hospital discharge, due to different structures and healthcare network characteristics. The study objective is to assess the implementation strategies of the outcome measures of ICHOM stroke in 6 Brazilian hospitals. Methods: For 1 year, we progressively implemented ICHOM outcome measurements in 6 stroke centers: 1 private, 1 public university and 4 primary stroke centers with telemedicine guidance. The data collection strategies included: in person interview, interview by phone or a link to an online form sent by e-mail. Results: 429 patients were included in the 90-day follow-up interview. In person interview was made for 80 patients (mean interview time of 5 minutes), by phone in 285 (mean interview time 8 minutes) and by e-mail in 64. There was loss of follow-up in 15% of in-person interviews, 28% on phone and 62% on e-mail. In the private hospital, where there is better data registry, only 18% of the patients were lost to follow-up, while 54% of telemedicine patients weren’t found for the interview, mainly because of lack of phone number register or even wrong number. Higher succeeded attempts occurred on evening calls compared to business hours’ calls. Conclusion: The data collection for outcome measurements of stroke patients in Brazil is still a challenge. The barrier for phone interviews was data registry error, and the correct phone number being registered allows the follow-up. Though requiring further validation, e-mail contact seems to be a good initial strategy, decreasing the need for phone calls and saving time. The phone calls are the option for patients who do not answer e-mails.